Harder and Harder to Breathe

Our mornings are getting harder around here. It takes Dru a while to feel good. 

She typically wakes up 4-5 times a night. I really wish I could let her cry it out, but I never know if she's pulled her NG tube out or had a messy diaper or if she's in pain. And now I worry if she's having a hard time breathing. 

It seems like the more formula that gets pumped into her belly at night, the more rock hard her abdomen gets, and her breathing starts to get so labored. 

Dru's belly is huge, but they tell me the ultrasound showed no fluid. But it can't be comfortable. 

So with the discomfort and the pressure on her lungs, Dru is not a happy camper until she gets some relief. And relief usually comes in the form of a major messy diaper which leads me to believe that some of the pressure in her belly is coming from her colon. Like she can't digest her formula well anymore. 

Maybe the TPN will help? We will see soon. We go back to primary's on Monday  

In the meantime, it's our state holiday here in Utah (Pioneer Day), so Dad is home, and that always means a fun day. 

And just so your not left with the idea that things are all bad around here--here's a picture of Dru trying Greek yogurt yesterday. She loved it!!!

She has also learned to clap and wave. I love seeing her use her hands to communicate more.