Live, Laugh and Love

We had another clinic visit today. It went well. Dru is stable. Her PELD score is now 18. We are moving up slowly but surely. 

Most days we spend in onesies and jammies, but when we go to primary's we put our best foot forward. 

Bows and dresses, and if we are really lucky, a smile after labs. It's bittersweet that she's getting so used to being poked that she hardly crys anymore. 

I have to say that she seems to be a bit more mellow since the feeding tube was placed. She's getting all her calories and not waking up as often to be fed in the night. That puts us all in a good mood. 

We were told today that we have a rocky road ahead. From here on out, Dru's health will fluctuate. The trick will be to catch her on a low to boost her PELD score, then "fix" her back to stable. 

We've got this. We are optimistic. We have each other. And a whole lot of extra support that we count as family too. 

In the meantime, we are going to do what we usually do. Live, laugh, and love. And tonight we get the added bonus of celebrating Trey's birthday. Can't believe I have a 13 year old!!!! Yikes!