Finding the Magic Number

At this point with Dru's disease, it's all about the numbers. 

The higher her score the more offers she can potentially get. And as Dr. Jensen has said, it only takes one good offer. We only need one

So far we are not getting any. 

Dru is stable but very sick. The only thing that can make her better is a new liver. 

We have officially been here for three weeks waiting for her liver to come. She's too sick to go home and needs more professional care than I can give her. 

If I had any doubt of that before, I was effectively reminded on Sunday night. 

At about 6 pm the nurses came in to do our nightly routine of starting her IV nutrition through her picc line. 

After everything was started I saw that her picc was leaking blood. Turns out there was a crack in the cap at the end of the IV line. 

So the nurses clamped it off and called the IV team to come place an IV for her nutrition until a new picc line could be placed the next morning. 

While we were waiting, Dru fell asleep. And she was sleeping good. 

Too good. Within an hour of her TPN being stopped, her glucose level dove to 24. 

She was not responsive. 

About 6 nurses were around her bed trying to rouse her. They were calling her name, flicking her feet, clapping their hands. She wouldn't open her eyes. 

An IV line was quickly placed and she was given a concentrated dose of dextrose. 

Finally she started stirring. They tested her blood sugar every hour through the night just to be sure. 

I was scared when she was so still, BUT I knew she'd be ok. I am so grateful for the nurses here who trust me when I say she's not herself or something's wrong. And then they do something about it. I feel safe here. 

Right now, Dru's labs seem to be changing everyday. And her points change almost everyday too. 

Right now she has a PELD score of 42. 

If she needs a transfusion in the next 12 or so hours she will be given a 1B for a week. 

That means she's critical, but fixable and a 1B will essentially put her on top of the waiting list. 

So for now we are just trying to find that "magic number" that will be the key to that one perfect offer.