Her lab results were about the same as last time so her PELD score is still 17.
The monkey is not gaining weight though. So a feeding tube is in her near future. I am having a hard time with this. I am not excited to learn how to place a tube down her nose. But more than that, I'm sad that now she will look like a sick baby. No more denial for me, there will be a visual reminder taped to her cheek all day, everyday.
On the bright side, we might all start getting more sleep if she doesn't wake up every 2-3 hours for a feeding.
No more whining, we will take it a day at a time and be thrilled that she is as stable as she is right now.
We are looking forward to our week together and celebrating this little man's fifth birthday tomorrow.
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